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Iowa Disability Resources And Organizations

Advocacy and Legal Rights

ADA Project: Great Plains ADA and Information Technology Center

The DBTAC-Great Plains ADA Center is one of ten Regional DBTAC ADA Centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR) to provide information, materials and technical assistance to individuals and entities that are covered by the Americans with Disabilities Act (ADA). In addition to the Americans with Disabilities Act, Great Plains ADA Center provides technical assistance regarding the interplay between the ADA and disability-related legislation such as the Family Medical Leave Act, Workforce Investment Act, and the Telecommunications Act.

DBTAC-Great Plains ADA Center
100 Corporate Lake Drive
Columbia, MO 65203
Phone/TTY: (573) 882-3600
Toll-free: (800) 949-4232
Fax: (573) 884-4925
Email: ada AT missouri.edu
Website: www.adaproject.org

Client Assistance Program

The Client Assistance Program advises and informs clients and applicants of all services and benefits available to them through programs authorized under the Rehabilitation Act of 1973 as amended (Act); assists and advocates for clients and applicants in their relationships with programs authorized under the Act; informs individuals with disabilities in the State of Iowa, especially those who have traditionally been unserved or underserved, of the services available to them under the Act and under Title I of the Americans with Disabilities Act (ADA); provides representation on the State Rehabilitation Council; and advocates for systems change in agencies funded under the Rehabilitation Act to improve services to Iowans with disabilities.

Client Assistance Program
Contact Person: Jackie Wipperman
Department of Human Rights
Division of Persons with Disability
Client Assistance Program
Capitol Complex, Lucas Building
Des Moines, IA 50319
Phone: (515) 281-3656
Voice/TTY Toll-free: (800) 652-4298
Email: jackie.wipperman AT iowa.gov
Website: www.adaproject.org

Family Voices of Iowa

Family Voices of Iowa aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through a national network, they provide families with the tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

Family Voices of Iowa
321 East 6th Street
Des Moines, Iowa 50309-1902
Toll-free: (800) 450-8667
Fax: (515) 243-1902
Email: f2finfo AT askresource.org
Website: www.familyvoices.org/states.php?state=IA

Iowans with Disabilities Exercising Advocacy Skills (IDEAS)

IDEAS is a self-advocacy training program for adults with disabilities of all types, junior and senior high school students with disabilities, and families of children with disabilities. IDEAS also work to improve Iowa's service system by advocating for needed changes in public policy.

Iowans with Disabilities Exercising Advocacy Skills
Mike Hoenig
IDEAS - Room 140A CDD
100 Hawkins Drive
Iowa City, IA 52242-1011
Phone: (319) 353-6448
Fax: (319) 356-8284
Email: michael-hoenig AT uiowa.edu
Website: www.healthcare.uiowa.edu/cdd/multiple/programs/ideas.asp

Iowans with Disabilities in Action (ID Action)

ID Action is a nonpartisan, statewide initiative dedicated to generating greater civic and political participation among people with disabilities. ID Action encourages Iowans with disabilities, their families and friends, service providers and others to get more involved in civic activities and the political process, which will lead to greater social inclusion and a better quality life for Iowans with disabilities.

Iowans with Disabilities in Action
P.O. Box 71369
Des Moines, IA 50325
Toll-free: (866) 432-2846
Email: info AT idaction.org
Website: www.idaction.org

Iowa Protection and Advocacy Services, Inc.

Iowa Protection and Advocacy Services, Inc. is a federally funded program that will protect and advocate for the human and legal rights that ensure individuals with disabilities and/or mental illness a free, appropriate public education, employment opportunities and residence or treatment in the least restrictive environment or method and for freedom from stigma. Iowa Protection and Advocacy Services will support people with disabilities to secure their rights and full participation as citizens through a program of self advocacy education, information and referral, non-legal advocacy and legal and systems advocacy.

Iowa Protection and Advocacy Services
950 Office Park Road, Suite 221
West Des Moines, IA 50265
Phone: (515) 278-2502
Toll-free: (800) 779-2502
TTY: (515) 278-0571
TTY Toll-free: (866) 483-3342
Fax: (515) 278-0539
Email: info AT ipna.org
Website: www.ipna.org

The Legal Center for Special Education

The Legal Center for Special Education (TLC) is a non-profit corporation created to provide effective, low-cost, and readily available legal and advocacy services to parents of children with disabilities in educational and related issues. TLC promotes non-adversarial methods of conflict resolution and encourages parents to build constructive working relationships with educators.

The Legal Center for Special Education
317 East Sixth Street
Des Moines, IA 50309-1903
Phone: (515) 309-0033
Toll-free: (866) 250-4545
Fax: (515) 309-0035
Email: tlciowa AT mcleodusa.net
Website: www.askresource.org/tlc


Iowa Center for AIDS Resources & Education (ICARE)

ICARE is a non-profit AIDS organization with staff and volunteers who provide comprehensive practical, emotional, and financial support to persons living with HIV/AIDS, their partners, families, friends and others concerned about HIV or AIDS in a safe, accepting and non-judgmental atmosphere.

Iowa Center for AIDS Resources and Education
438 Southgate Avenue
Iowa City, IA 52240
Phone: (319) 338-2135
Toll-free: (888) 338-2135 (SE Iowa only)
Fax: (319) 341-9828
Email: icare AT icareiowa.org
Website: www.icareiowa.org


Alzheimer's Association

The Alzheimer's Association provides vital services and support to individuals, families and care partners. Their mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

Alzheimer's Association of Iowa
Big Sioux Chapter
420 Chambers Street
P.O. Box 3716
Sioux City, IA 51101
Phone: (712) 279-5802
Email: help AT alz-sioux.org
Website: www.alz-sioux.org

East Central Iowa Chapter
1570 42nd Street NE
Cedar Rapids, IA 52402
Phone: (319) 294-9699
Fax: (319) 294-0068
Email: kelly.hauer AT alz.org
Website: www.alz.org/eci

Greater Iowa Chapter
1730 28th Street
West Des Moines, IA 50266
Phone: (515) 440-2722
Fax: (515) 440-6385
Email: greateriowa AT alz.org
Website: www.alz.org/greateriowa

Midlands Chapter (serving East/Northeast NE and Southwest IA) 1941 South 42nd Street, Suite 205
Omaha, NE 68105
Phone: (402) 502-4300
Fax: (402) 502-7001
Email: bonnie.lingard AT alz.org
Website: www.alz.org/midlands


VSA Arts of Iowa (Formerly Very Special Arts of Iowa)

VSA Arts of Iowa promotes the creative power of Iowans of all abilities through arts experiences. VSA Arts of Iowa uses art to improve the capabilities of children and adults with disabilities to learn and express themselves.

VSA Arts of Iowa
Stephanie Jessen, Executive Director
Iowa Department of Education
Grimes State Office Building
400 East 14th Street
Des Moines, IA 50319
Phone: (515) 281-5839
TTY: (515)281-6524
Relay: (800) 735-2943
Fax: (515) 281-6544
Email: vsai AT iowa.gov
Website: www.iowa.gov/vsa

Assistive Technology

Iowa Program for Assistive Technology (IPAT)

IPAT works with consumers and family members, service providers, and state and local agencies/organizations to promote assistive technology through awareness, training, and policy work. IPAT accomplishes this through five specific goal areas: education, employment, health, community living and recreation, and telecommunications and information technology.

Iowa Program for Assistive Technology
Center for Disabilities and Development
The University of Iowa
100 Hawkins Drive, South 295
Iowa City, IA 52242-1011
Phone: (319) 353-8777
Toll-free: (800) 779-2001
TTY / Toll-free: (877) 686-0032
Website: www.iowaat.org

Iowa Able Foundation

The Iowa Able Foundation helps Iowans with disabilities, their families and older Iowans access adaptive devices/equipment and home modifications through its loan programs.

Iowa Able offers an alternative financial solution by providing loans with flexible terms to help individuals increase their independence at home, at work, and in the community.

Iowa Able Foundation
307 North 13th Street, Suite 500
Centerville, IA 52544
Phone: (888) 222-8943, ext. 225
TTY: (641) 856-3350
Fax: (641) 856-3101
Email: info AT iowable.org
Website: www.iowaable.org

Attention Deficit/Hyperactivity Disorder

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

CHADD provides advocacy, education and support to persons with Attention-Deficit/Hyperactivity Disorder (AD/HD). In addition to an informative Web site, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with AD/HD.

Cedar Rapids Branch
Contact Persons: Mona Schultz or S.J. Taylor
Mercy Medical Center
701 10th Street SE
Cedar Rapids, IA
Phone: (319) 489-2361 or (319) 373-0255
Email: cedar-rapids AT chadd.net
Website: www.chadd.net/80R

Cedar Valley Branch
St. Patrick's Church Library
705 Main Street
Cedar Falls, IA
Email: cedar-valley AT chadd.net
Website: www.chadd.net/293

Dubuque Branch
Contact persons: Jeanne Patterson or Mark Schreiber
St. Peter Lutheran Church
3200 Asbury Road
Dubuque, IA
Phone: (563) 557-7529
Email: dubuque AT chadd.net
Website: www.chadd.net/312

Greater Des Moines Branch
Contact Person: Julie
West Des Moines Public Library
4000 Mills Civic Parkway
West Des Moines, IA
Phone: (515) 223-6730
Email: greater-des-moines AT chadd.net
Website: www.chadd.net/597

Mississippi River Branch (Quad Cities)
Contact person: Deb Kopacz
Hand in Hand Programs for Special Needs
3860 Middle Road
Bettendorf, Iowa 52722
Phone: (563) 332-4482
Email: mississippi-river AT chadd.net
Website: www.chadd.net/628

Muscatine Branch
Contact Person: Diane Broderson
Muscatine YMCA
1823 Logan Street
Muscatine, IA 52761
Phone: (563) 263-9996
Email: muscatine AT chadd.net
Website: www.chadd.net/273

Siouxland Branch
Contact Person: Marlene Pietz
Northwest Area Education Agency - Room F
1520 Morningside Avenue
Sioux City, Iowa
Phone: (712) 222-6052
Email: siouxland AT chadd.net
Website: www.chadd.net/748


The Autism Society of Iowa

The Autism Society of Iowa is an affiliate of the Autism Society of America. Its mission is to provide advocacy, support and information to individuals with Autism Spectrum Disorders, their families, professionals, and communities throughout the state of Iowa.

Autism Society of Iowa
4549 Waterford Drive
West Des Moines, Iowa 50265
Phone: (515) 327-9075
Toll-free: (888) 722-4799
Email: autism50ia AT aol.com
Website: www.autismia.org

Blindness/Visual Impairments

Iowa Braille School Assistive Device Center for the Visually Impaired

The purpose of the Assistive Device Center for the Visually Impaired is to lend equipment to students in order to help educational teams make more informed choices regarding assistive technology devices.

Iowa Braille School
Rosa Mauer, Technology Consultant
1002 G Avenue, Vinton, IA 52349
Phone: (319) 472-5221 x4039
Toll-free: (800) 645-4579
Fax: (319) 472-4371
Email: rmauer@iowa-braille.k12.ia.us
Website: www.iowa-braille.k12.ia.us

Iowa Department for the Blind

Iowa Department for the Blind offers specialized, integrated services that blind and severely visually impaired Iowans need to live independently and work competitively. Department services and programs include: a library for the blind and physically handicapped, vocational rehabilitation services, independent living rehabilitation services, the adult orientation and adjustment center, business enterprises program, an aids and devices store, and public education and in-service training.

Cedar Rapids Branch
411 3rd Street SE, Suite 700
Cedar Rapids, IA 52401
Phone: (319) 365-9111
Toll-free: (888) 346-9557 (in Iowa)
Fax: (319) 298-9369
Email: information AT blind.state.ia.us
Website: www.blind.state.ia.us

Des Moines Branch
524 Fourth Street
Des Moines, IA 50309-2364
Phone: (515) 281-1333
Toll-free: (800) 362-2587 (in Iowa)
TTY: (515) 281-1355
Fax: (515) 281-1263
Email: information AT blind.state.ia.us
Website: www.blind.state.ia.us

Waterloo Branch
3420 University Avenue, Suite A
Waterloo, IA 50701
Phone: (319) 226-3352
Toll-free: (888) 378-4397 (in Iowa)
Fax: (319) 226-3354
Email: information AT blind.state.ia.us
Website: www.blind.state.ia.us

The Iowa Radio Reading Information Service (IRIS) For the Blind and Print Handicapped, Inc.

Iowa's first and only radio reading service for the blind and print handicapped. IRIS is available to anyone who cannot read due to blindness, impaired vision or physical handicap. Simply contact IRIS for an application. IRIS provides the organization and equipment, including a special pre-tuned receiver for each listener. Radio receivers remain the property of IRIS, but are loaned to listeners for as long as the receiver is needed.

Iowa Radio Reading Information Services
100 E. Euclid Ave., Suite 117
Des Moines, Iowa 50313
Phone: (515) 243-6833
Fax: (515) 883-1906
Toll-free: (877) 404-4747
Email: info AT iowaradioreading.org
Website: www.iowaradioreading.org

Brain Injury

Brain Injury Association of Iowa

The mission of the Brain Injury Association of Iowa is to create a better future through brain injury prevention, education and advocacy. The Association exists to support, assist, and advocate for persons with acquired brain damage, their family members, their friends, and professionals who work with people who have had brain and head injuries.

Brain Injury Association of Iowa
7025 Hickman Road, Suite 7
Urbandale, Iowa 50322
Toll-free: (800) 444-6443
Email: info AT biaia.org
Website: www.biausa.org/Iowa

On With Life, Inc.

On With Life provides a network of services for persons with a brain injury or other life altering condition by providing programs specializing in brain injury rehabilitation, subacute medical management, long-term care, supportive community living, employment services, and life care planning.

On With Life
Ankeny Office
715 SW Ankeny Road
Ankeny, Iowa 50023
Phone: (800) 728-0645
Email: info AT onwithlife.org
Website: www.onwithlife.org

Centers for Independent Living

Centers for Independent Living (CILs) are private, nonprofit corporations that provide services to maximize the independence of individuals with disabilities and the accessibility of the communities they live in. Centers provide, among other things, several core services: advocacy, independent living skills training, information and referral, and peer counseling.

Black Hawk Center for Independent Living
Kenneth Schuman, Executive Director
312 Jefferson Street
Waterloo, IA 50701
Phone: (319) 291-7755
Toll-free: (888) 291-7754
Fax: (319) 291-7781
Email: kenneth.s AT blackhawkcenter.org
Website: www.blackhawkcenter.org
Counties Serving: Benton, Bremer, Black Hawk, Butler, Grundy

Central Iowa Center for Independent Living
Robert Jeppesen, Executive Director
655 Walnut Street, Suite 131
Des Moines, IA 50309
Phone: (515) 243-1742
TTY: (515) 243-2177
Fax: (515) 246-5385
Email: av8r AT centraliowacil.com
Website: www.centraliowacil.com
Counties Serving:Boone, Dallas, Jasper, Madison, Polk, Story, Warren

Evert Conner Rights and Resources Center for Independent Living
Scott R. Gill, Executive Director
730 S. Dubuque Street
Iowa City, IA 52240
Phone/TTY: (319) 338-3870
Toll-free: (800) 983-0272
Fax: (319) 339-8385
Email: scottg AT theconnercenter.org
Website: www.theconnercenter.org
Counties Serving:Benton, Cedar, Henry, Iowa, Johnson, Jones, Linn, Washington

Iowa-Illinois Center for Independent Living
Liz Sherwin, Executive Director
P.O. Box 6156
Rock Island, IL 61204-6156
Phone/TTY: (309) 793-0090
Fax: (309) 283-0097
E-mail: execdirector AT iicil.com
Website: www.iicil.com
Counties Serving:Clinton, Muscatine, Scott

League of Human Dignity SW Iowa Center for Independent Living
Carrie England, Executive Director
1520 Avenue M
Council Bluffs, IA 51501
Phone/TTY: (712) 323-6863
Fax: (712) 323-6811
Email: cinfo AT leagueofhumandignity.com
Website: www.leagueofhumandignity.com
Counties Serving:Cass, Fremont, Harrison, Mills, Montgomery, Page, Pottawattamie, Shelby

South Central Iowa Center for Independent Living
Deb Philpot, Executive Director
1907 17th Avenue E
Oskaloosa, IA 52577
Phone: (641) 672-1867
Fax: (641) 672-1867
Email: brookie43 AT gmail.com
Counties Serving: Mahaska, Monroe, Appanoose

Three Rivers Independent Living Center
Doug Moravek, Executive Director
520 Nebraska Street, Suite 324
Sioux City, IA 51101
Phone/TTY: (712) 255-1065
Fax: (712) 255-7712
Email: director1 AT trilc.org
Website: www.trcil.org
Counties Serving: Woodbury

Cerebral Palsy


The mission of 4MyChild is to provide families with the most comprehensive resource and compassionate voice for all things related to caring for a child with Cerebral Palsy, Erb's Palsy, and other neurological injuries.

39555 Orchard Hill Place, Suite 365
Novi, MI 48375
Phone: 1-800-4MYCHILD (1-800-469-2445)
Email: contactus AT 4mychild.com
Website: www.cerebralpalsy.org

United Cerebral Palsy Association

The United Cerebral Palsy Association is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. The national organization and its nationwide network of affiliates strive to ensure the inclusion of persons with disabilities in every facet of society - from the Web to the workplace, from the classroom to the community.

United Cerebral Palsy Association
1660 L Street, NW, Suite 700
Washington, DC 20036
Phone: (800) 872-5827
Fax: (202) 776-0414
Email: info AT ucp.org
Website: www.ucp.org


Ronald McDonald House Charities

The mission of Ronald McDonald House Charities is to provide a safe supportive "home away from home" for families with children receiving critical medical care in Iowa. Ronald McDonald Houses offer families a way to stay together, in proximity to the treatment hospital, and be comfortable and cared for during their stay.

Ronald McDonald House Charities of Central Iowa
1441 Pleasant Street
Des Moines, IA 50314
Phone: (515) 243-2111
Fax: (515) 280-3111
Website: www.rmhdesmoines.org

Ronald McDonald House Charities of Eastern Iowa
730 Hawkins Drive
Iowa City, IA 52246
Phone: (319) 356-3939
Fax: (319) 353-6873
Email: iowacityrmh AT gmail.com
Website: www.rmhciowacity.org

Ronald McDonald House Charities of Siouxland, Inc.
2500 Nebraska Street
Sioux City, IA, 51104
Phone: (712) 255-4084
Email: rmhscia1 AT aol.com
Website: www.ronaldhouse-siouxcity.com

Civil Rights and Discrimination Enforcement

Iowa Civil Rights Commission

The mission of the Iowa Civil Rights Commission is to enforce civil rights laws, increase public awareness of civil rights, provide dispute resolution services, and offer community services throughout the state. The Commission's major duty is to enforce state and federal statutes that prohibit discrimination in employment, public accommodations, housing, education and credit by investigating and litigating civil rights complaints.

Iowa Civil Rights Commission
Grimes State Office Building
400 East 14th Street
Des Moines, IA 50319-1004
Phone: (515) 281-4121
Toll-free: (800) 457-4416
Fax: (515) 242-5840
Website: www.state.ia.us/government/crc

U.S. Equal Employment Opportunity Commission (EEOC)

The EEOC enforces among others, Title I and Title V of the Americans with Disabilities Act of 1990, which prohibit employment discrimination against qualified individuals with disabilities in the private sector, and in state and local governments and Sections 501 and 505 of the Rehabilitation Act of 1973, which prohibit discrimination against qualified individuals with disabilities who work in the federal government.

United States Equal Employment Opportunity Commission
1801 L Street, N.W.
Washington, D.C. 20507
Phone: (800) 669-4000
TTY: (800) 669-6820
Email: info AT ask.eeoc.gov
Website: www.eeoc.gov

Cognitive, Intellectual, and Developmental Disabilities

The ARC of Iowa

The Arc is a community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support to ensure that every individual and family affected by intellectual disability has access to the information, advocacy, and skills they need to participate as active citizens and active members of their community.

The ARC of Iowa
State Headquarters
715 East Locust
Des Moines, IA 50309
Phone: (515) 283-2358
Toll-free: (800) 362-2927
Fax: (515) 244-4948
Email: arciowa AT aol.com
Website: www.thearc.org

Iowa's Developmental Disabilities Council

Iowa's Developmental Disabilities Council promotes the development of a coordinated system of services and supports that provide opportunities for people with developmental disabilities to be independent, productive, integrated and included in their communities.

Iowa's Development Disabilities Council
617 East Second Street
Des Moines, IA 50309
Voice/TTY: (515) 281-9082
Toll-free: (800) 452-1936
Fax: (515) 281-9087
Email: fmorris AT dhs.state.ia.us
Website: www.idaction.org/govdd/index.htm

Iowa Association of Community Providers

The Iowa Association of Community Providers (IACP) is comprised of over 142 community-based organizations providing services to persons with mental illness, mental retardation and other developmental disabilities. The association is committed to promoting healthy and secure communities in which people have access to appropriate services and supports which enable them to be a part of the community of their choice.

Iowa Association of Community Providers
Shelly Chandler, Executive Director
7025 Hickman Road, Suite 5
Urbandale, IA 50322
Phone: (515) 270-9495
Fax: (515) 270-1035
Email: schandler AT iowaproviders.org
Website: www.iowaproviders.org

Community Resources

2-1-1 (United Way)

Coordinated by the Iowa Alliance of Information and Referral Systems (Iowa AIRS), the Iowa 2-1-1 system is dedicated to "build Iowa's capacity to strengthen the way Iowan's access health and engage in civilian life" by referring people to appropriate agencies and programs.

2-1-1 (United Way)
Website: www3.irissoft.com/iowa/

Exceptional Persons, Inc.

Exceptional Persons, Inc. (EPI) EPI was created to facilitate and coordinate the development of local activity centers for persons with disabilities. EPI strives to makes a positive difference in the lives of people with disabilities, families, and children as they live and work in the community.

Exceptional Persons Inc
760 Ansborough Avenue
P.O. Box 4090
Waterloo, IA 50704-4090
Phone: (319) 232-6671
Fax: (319) 232-0453
Email: karen.jones AT episervice.org
Website: www.episervice.org

Council of Goodwill Industries

The mission of Goodwill Industries is to assist persons with disabilities or those who are vocationally disadvantaged to achieve full participation and integration into society. This mission is accomplished through the development and delivery of effective human services that enables individuals to attain their goals of personal and economic independence.

Goodwill Industries of Central Iowa
4900 NE 22nd Street
Des Moines, IA 50313
Phone: (515) 265-5323
Fax: (515) 265-0645
Website: www.dmgoodwill.org

Goodwill of the Heartland
1410 South First Ave.
Iowa City, IA 52240
Phone: (319) 337-4158 Ext. 101
Fax: (319) 337-7369
Website: www.goodwillheartland.org

Wall Street Mission - Goodwill Industries
3100 West 4th Street
Sioux City, IA 51102
Phone: (712) 258-4511
Toll-free: (877) 608-7775
Website: www.goodwillscia.com

Goodwill Industries of Northeast Iowa, Inc.
2640 Falls Avenue
Waterloo, IA 50701
Phone: (319) 234-4626
Fax: (319) 234-2504
Email: tgavin AT gwneia.org
Website: www.gwneia.org

Goodwill Industries of Eastern Nebraska and Southwest Iowa
1111 S. 41st Street
Omaha, Nebraska 68105
Phone: (402) 341-4609
Fax: (402) 341-3061
Website: www.goodwillomaha.com

Cystic Fibrosis

Iowa Cystic Fibrosis Chapter

The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Iowa Cystic Fibrosis Chapter
1025 Ashworth Road, Suite #512
West Des Moines, IA 50265
Phone: (515) 252-1530
Toll-free: (800) 798-5151
Fax: (515) 327-8990
Email: iowa@cff.org
Website: www.cff.org/Chapters/iowa

Deafness and Hearing Impairments

Deaf Services Commission of Iowa (DSCI)

DSCI's mission is to serve, represent, and provide a greater understanding of deaf and hard of hearing individuals at any age across the state. Services include, but are not limited to, sign language interpreting, interpreter referral services, individual assistance and consultations services.

Deaf Services Commission of Iowa
Kathryn Baumann-Reese, Administrator
Iowa Department of Human Rights, 2nd Floor
Lucas State Office Building
321 East 12th Street
Des Moines, IA 50319
Phone: (515) 281-3164
Toll-free Voice/TTY: (888) 221-3724
Fax: (515) 242-6119
Email: dhr.dsci AT iowa.gov
Website: www.state.ia.us/government/dhr/ds

Hearing Loss Association of America (Formerly SELF HELP FOR HARD OF HEARING PEOPLE, INC. (SHHH))

The Hearing Loss Association of America (HLAA) is the nation's largest organization for people with hearing loss. HLAA exists to open the world of communication for people with hearing loss through information, education, advocacy, and support.

Hearing Loss Association of America
Central Iowa Chapter
Betty Hebard, President
Des Moines, IA
Phone/TTY: (515) 279-2148
Email: achebard AT hotmail.com
Website: www.hearingloss.org

Opening Doors: Technology and Communication Options for Children with Hearing Loss

Opening Doors is a U.S. Department of Education booklet designed to provide information about resources available to families of children with hearing loss. It is available by calling the Department of Education, toll-free at (877) 433-7827 or (877) 576-7734 (TTY). It is also available by going to www.edpubs.org and entering Opening Doors in the title window.

Relay Iowa

Relay Iowa is a telecommunications relay service providing full telephone accessibility to people who are deaf, hard-of-hearing or speech impaired. Specifically trained Communication Assistants (CAs) process relay calls and stay on the line to relay conversations electronically, over a Text Telephone (TTY) or verbally to hearing parties. Both TTY and voice users may initiate calls through Relay Iowa.

Relay Iowa
Contact: Lori Sporrer
Relay Iowa Outreach Program Manager
6925 Hickman Road
Des Moines, IA 50322
7-1-1 or TTY/ASCII: (800) 735-2942
Voice: (800) 735-2943
Relay Iowa VCO Direct: (800) 735-4313
Relay Iowa Speech to Speech Service: (877) 735-1007
Fax: (712) 653-2440
Email: lori.sporrer AT hamiltonrelay.com
Website: www.relayiowa.com

Telecommunications ACCESS Iowa (TAI)

TAI's mission is to assist individuals in selecting telephone equipment that allows them to speak directly over the telephone or to use their equipment in conjunction with the Relay Iowa service. Funding sources are available to help pay for hearing aids. Qualified individuals can receive a voucher for approximately 95% of the average cost of specialized telephone equipment.

Telecommunications ACCESS Iowa
6925 Hickman Road
Des Moines, IA 50322
Phone: (515) 282-5099
Toll-free Voice/TTY: (800) 606-5099
Phone/TTY: (515) 282-5099
TTY/VP: (515) 282-5130
VP: tai.dyndns.tv
Fax: (515) 237-3917
Website: www.relayiowa.com/tai

Dental Care

Dental Care for Persons with Disabilities

Children and young adults with disabilities from low-income families may be eligible for free dental care through the Dental Care for Persons with Disabilities program coordinated by The University of Iowa. The program is administered by the Department of Pediatric Dentistry, the University of Iowa Center for Disabilities and Development, and the Iowa Department of Public Health.

Dental Care for Persons with Disabilities
Gayle Gilbaugh, Project Coordinator
Center for Disabilities and Development
University of Iowa Hospitals and Clinics
100 Hawkins Drive
Iowa City, Iowa 52242-1011
Phone: (319) 356-1513

Disability Resource Library

Center for Disabilities and Development

The Disability Resource Library provides resources with annual subscriptions, per-item-fee or free-of-charge to individuals with disabilities and members of their families, Centers for Independent Living, and the University of Iowa staff and students. DRL collections focus on information for, by, and about people with disabilities. Materials come in a variety of formats -- books, videos, training curricula, software, and audiotapes. You can borrow materials in person or by mail.

Center for Disabilities and Development
100 Hawkins Drive, Room 311
Iowa City, IA 52242
Phone: (319) 356-1345
Toll-free: (800) 272-7713
TTY Toll-free: (877) 686-0032
Email: disability-library AT uiowa.edu
Website: www.healthcare.uiowa.edu/cdd/multiple/drl/drl.asp

Disability Training

Building Supportive Communities - Disability Training

Sponsored by the Iowa Training Consortium, the Training Consortium's mission is to promote - through training, education, and technical assistance - a system of individualized supports that will assist Iowans with developmental disabilities to live as fully participating members of their communities. The goal of this web site is to advertise and encourage training and education to build supportive communities for Iowans with disabilities.

Office of Community Education
Center for Disabilities and Development
100 Hawkins Drive
Iowa City, IA 52242-1011
Phone: (319) 353-6448
Fax: (319) 356-8284
Email: information AT DisabilityTraining.org
Website: disabilitytraining.org

Down Syndrome

Hawkeye Area Down Syndrome Association

The Hawkeye Area Down Syndrome Association (HADSA) strives to provide accurate, current information, education and support to parents and family members of individuals with Down Syndrome in the Iowa City and Cedar Rapids area.

Hawkeye Area Down Syndrome Association
435 Lincoln Street
Ainsworth, IA 52201
Phone: (319) 335-7737
Email: contact AT hadsa.org
Website: www.hadsa.org

Up With Down

Up With Down is a non-profit support and advocacy group for individuals with Down syndrome and their families. Up with Down supports families through personal contact and education, and provides a forum to express feelings and work through some of the difficulties that may arise in raising a child with Down syndrome.

Up with Down
P.O. Box 8082
Des Moines, Iowa 50301
Email: newparent AT upwithdown.com
Website: upwithdown.com


International Dyslexia Association, Iowa Branch (IDA-IA)

The purpose of the Iowa Branch of IDA (IDA-IA) is to increase awareness of dyslexia and promote services that address the importance of diagnosis and remediation for those not meeting their reading potential. IDA-IA provides services and assistance in a way that promotes unity, support, and cooperation among those who work with these individuals so that all communities in Iowa benefit from the skills and talents of its citizens.

International Dyslexia Association, Iowa Branch
P.O. Box 11188
Cedar Rapids, IA 52410-1188
Phone: (866) 782-2930
Email: og-ida_tmjp AT earthlink.net
Website: www.ida-ia.org

Early Intervention


Early ACCESS is a partnership between families with young children, birth to age three, and providers from the Iowa Departments of Education, Public Health, Human Services and the Child Health Specialty Clinics. The purpose of the program is for families and staff to work together in identifying, coordinating and providing needed services and resources that will help the family assist their infant to grow and develop. All services to the child are provided in the child's natural environment including the home and other community settings where children of the same age without disabilities participate.

Programs for Infants and Toddlers with Disabilities: Ages Birth Through 3
Department of Education
Grimes State Office Building, 3rd Floor
Des Moines, IA 50310-0146
Toll-free: 1-888-IAKIDS1 (1-888-425-4371)
Website: www.earlyaccessiowa.org


Bureau of Children, Family and Community Services
Lana Michelson, Bureau Chief
Iowa Department of Education
Grimes State Office Building
Des Moines, IA 50319-0146
Phone: (515) 281-5735
Email: Lana.Michelson AT iowa.gov
Website: www.state.ia.us/educate

Bureau of Early Childhood Services
LauraBelle Sherman-Proehl, Bureau Chief
Iowa Department of Education
Grimes State Office Building
Des Moines, IA 50319-0146
Phone: (515) 281-3924
Email: laurabelle.sherman-proehl AT iowa.gov

State Coordinator for NCLB (No Child Left Behind)
Paul Cahill, Administrative Consultant
Iowa Department of Education
Grimes State Office Building
Des Moines, IA 50319-0146
Phone: (515) 281-3944
Email: paul.cahill AT iowa.gov

Employment and Vocational Rehabilitation

Employment Policy Group

The mission of the Employment Policy Group is to promote public policies that encourage a positive return on businesses' personnel investment and lead to economic self-sufficiency for individuals with disabilities. The Group focuses on establishing enduring partnerships among businesses, people with disabilities and educators, as well as state and federal policy-makers.

Employment Policy Group
Center for Disabilities and Development
108 3rd Street, Suite 350
Des Moines, IA 50309-4770
Phone: (515) 283-2310
Toll-free: (866) 691-4246
Fax: (515) 283-2307

Iowa Commission of Persons with Disabilities

The Division of Persons with Disabilities exists to promote the employment of Iowans with disabilities and reduce barriers to employment by providing information, referral, assessment, guidance, training, and negotiation services to employer and citizens.

Iowa Commission of Persons with Disabilities
Jill Fulitano-Avery, Administrator
Iowa Department of Human Rights
Lucas State Office Building
321 East 12th Street
Des Moines, IA 50319
Phone: (515) 242-6119
Toll-free Voice/TTY: (888) 219-0471
Fax: (515) 242-6119
Email: dhr.disabilities AT iowa.gov
Website: www.state.ia.us/government/dhr/pd/index.html

Iowa Vocational Rehabilitation Services (IVRS)

IVRS' mission is to work for and with individuals with disabilities to achieve their employment, independence, and economic goals. To be eligible for vocational rehabilitation services, an individual must have a disability that substantially limits his/her ability to be employed; and he/she must require vocational rehabilitation services in order to prepare for, obtain or retain employment.

Iowa Vocational Rehabilitation Services
510 East 12th Street
Des Moines, Iowa 50319-0240
Voice/TTY: 515-281-4211
Fax: 515-281-7645
Website: www.ivrs.iowa.gov

Job Accommodation Network

Job Accommodation Network is a free consulting service designed to increase the employability of people with disabilities by: 1) providing individualized worksite accommodations solutions, 2) providing technical assistance regarding the ADA and other disability related legislation, and 3) educating callers about self-employment options.

Job Accommodations Network
PO Box 6080
Morgantown, WV 26506-6080
Phone: (304) 293-7186
Toll-free: (800) ADA-WORK [(800)232-9675]
TTY: (877) 781-9403
Fax: (304) 293-5407
Email: jan AT jan.wvu.edu
Website: www.jan.wvu.edu

VCU-RRTC on Workplace Supports and Job Retention

Information, resources, and research about work and disability issues. The purpose of the Virginia Commonwealth University RRTC on Workplace Supports and Job Retention is to study those supports that are most effective for assisting individuals with disabilities maintain employment and advance their careers. The primary stakeholders for this project are persons with disabilities, with an emphasis on those who are unemployed, underemployed or at risk of losing employment.

VCU-RRTC on Workplace Supports and Job Retention
1314 West Main Street
P.O. Box 842011
Richmond, VA 23284-2011
Voice: (804) 828-1851
TTY: (804) 828-2494
Fax: (804) 828-2193
Website: www.worksupport.com


The Abilities Fund

The Abilities Fund is the first nationwide nonprofit community developer and financial institution focused exclusively on expanding entrepreneurial opportunities, including access to capital, for people with disabilities.

The Abilities Fund
307 North 13th Street, Suite 500
Centerville, IA 52544-1823
Phone/TTY: (641) 856-2173
Toll-free: (888) 222-8943
Fax: (641) 856-3101
Email: info AT abilitiesfund.org
Website: www.abilitiesfund.org

Entrepreneurs with Disabilities (EWD)

The Entrepreneurs with Disabilities (EWD) program helps qualified individuals with disabilities establish, acquire, maintain or expand a small business by providing technical and financial assistance.

Iowa Department of Economic Development
200 East Grand Avenue
Des Moines, IA 50309
Phone: (515) 242-4819
Toll-free: (800) 532-1215
Email: businessfinance AT iowalifechanging.com
Website: www.iowalifechanging.com/business/ewd.aspx


Epilepsy Foundation North/Central Illinois, Iowa, Nebraska

Services in Iowa are provided by Epilepsy Foundation staff assisted by the Epilepsy Foundation Iowa Community Council. The Foundation will ensure that people with seizures are able to participate in all life experiences; through services, education, advocacy and research.

Epilepsy Foundation
1111 Ninth Street, Suite 275
Des Moines, IA 50314
Phone: (515) 238-7660
Email: kashlock AT efncil.org
Website: www.epilepsyheartland.org/iowa.php

Family Resources

ASK Family Resource Center

The Access for Special Kids (ASK) Family Resource Center is a "one-stop-shop" for children and adults with disabilities and their families. Through its member organizations, the Center provides a broad range of information, advocacy, support, training and direct services. Activities include in part: information and advocacy in special education and related matters; conflict resolution services; disability-specific information and more.

ASK Family Resource Center
21 East Sixth Street
Des Moines, IA 50309
Phone: (515) 243-1713
Toll-free: (800) 450-8667
Fax: 515-243-1902
Email: info AT askresource.org
Website: www.askresource.org

Farm Families

Iowa AgriAbility Project

Iowa AgrAbility: Innovations That Work for Home and Farm is a program that helps farm families affected by disabilities to adapt their homes and farms. The program can help any family member with a disability to: modify tools, equipment, and machinery, make home and farm buildings more accessible, and find services that meet specific needs.

Iowa AgrAbility Project
Mary H. Yearns, Ph.D., Project Coordinator
62 LeBaron Hall
Iowa State University
Ames, IA 50011
Phone: (515) 294-8520
Fax: (515) 294-1908
TDD: (800) 854-1658
Email: yearns AT iastate.edu
Website: www.extension.iastate.edu/agrability

Health and Special Healthcare Needs

Center for Disabilities and Development

The mission of the CDD is to improve the health and independence of people with disabilities and advance the community systems on which they rely.

University of Iowa Hospitals and Clinics
100 Hawkins Drive
Iowa City, IA 52242-1011
Phone: (319) 353-6900
Toll-free: (877) 686-
TTY Toll-free: (877) 686-0032
Email: CDD-Webmaster AT uiowa.edu
Website: www.healthcare.uiowa.edu/cdd

Housing Assistance

HUD Public Housing Rental Assistance

Your local Housing Agency is responsible for the management and operation of its public housing programs (e.g., leased housing, Section 8). Public housing was established to provide decent and safe rental housing for eligible low-income families, the elderly, and persons with disabilities. The U.S. Department of Housing and Urban Development (HUD) administers federal aid to local housing agencies that manage the housing for low-income residents at rents they can afford. If you are interested in applying for housing assistance, contact your local Housing Agency or contact the local HUD Field Office.

Des Moines Field Office
210 Walnut Street, Room 239
Des Moines, IA 50309-2155
Phone: (515) 284-4512
Fax: (515) 284-4743
TTY: (515) 284-4728

Rent Reimbursement and Property Tax Credits

Iowans who are over 65 or disabled may be eligible for a property tax credit or rent reimbursement. The property tax credit or rent reimbursement is based on your annual household income and is figured according to a formula set by the Iowa Department of Revenue and Finance. To apply for the property tax credit, contact your county Assessor's office. For rent reimbursement, contact the Iowa Department of Revenue and Finance.

Iowa Department of Revenue and Finance
Rent Reimbursement Processing
P.O. Box 10459
Des Moines, IA 50306-0459
Toll-free: (800) 367-3388
Email: idr AT iowa.gov
Website: www.state.ia.us/tax

USDA Rural Housing Service

In rural communities, the U.S. Department of Agriculture (USDA) provides rental assistance programs, home improvement and repair loans and grants, and self-help housing loans to low-income individuals and families.

Rural Development State Office
210 Walnut Street, Room 873
Des Moines, IA 50309-2196
Phone: (515) 284-4663
Website: http://offices.sc.egov.usda.gov/locator/app
Website: www.rurdev.usda.gov/rhs (USDA Housing)

Learning Disabilities

Learning Disabilities Association of Iowa

The Learning Disabilities Association of Iowa is dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families by: encouraging effective identification and intervention, fostering research, and protecting the rights of individuals with learning disabilities under the law.

Learning Disabilities Association of Iowa
State Coordinator: Kathy Specketer
321 East 6th Street
Des Moines, IA 50309
Phone: (515) 280-8558
Toll-free: (888) 690-5324
Fax: (515) 243-1902
Email: kathylda AT askresource.org
Website: www.lda-ia.org

Leukemia and Lymphoma

Leukemia and Lymphoma Society, Iowa Chapter

The Leukemia and Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families.

Leukemia and Lymphoma Society
Executive Director: Melanie Brown
8033 University Boulevard, Suite A
Des Moines, IA 50325
Phone: (515) 270-6169
Toll-free: (800) 347-1074
Fax: (515) 270-5392
Email: brownm AT ia.leukemia-lymphoma.org
Website: www.ia.leukemia-lymphoma.org


Lupus Foundation Of America, Iowa Chapter

The Lupus Foundation of America is the nation's leading nonprofit voluntary health organization dedicated to improving the diagnosis and treatment of lupus, supporting individuals and families affected by the disease, increasing awareness of lupus among health professionals and the public, and striving to gain support for lupus research into the cause, treatment and cure for lupus.

Lupus Foundation
P.O. Box 13174
Des Moines, IA 50310-0174
Phone: (515) 279-3048
Toll-free: (888) 279-3048 (within IA only)
Fax: (515) 277-9803
Email: LupusIAchapter AT aol.com
Website: www.lupusia.org

Medicare and Medicaid Services


Medicare is a Health Insurance Program for people age 65 or older, some disabled people under age 65, and people of all ages with End-Stage Renal Disease (permanent kidney failure treated with dialysis or a transplant). Medicare is an important health insurance program run by the federal government that provides for both hospital care (Medicare Part A), medical care (Medicare Part B) and prescription insurance (Medicare Part D). For more information on Medicare enrollment, enrollees should contact the local Department of Human Services (DHS) offices in the county where they reside.

Iowa Department of Human Services
Hoover State Office Building
1305 E. Walnut Street
Des Moines, Iowa 50319
Toll-free: (800) 633-4227
Information for Part A: (877) 910-8139 (Toll-free)
Information for Part B: (800) 532-1285 (Toll-free)
Web: www.medicare.gov

Medicaid (Title 19)

Medicaid is a state/federal program that provides health insurance for certain groups of low income people. In general, Medicaid covers: low income parents and their children, older people who need long-term care, and people with disabilities.

Iowa Department of Human Services
Hoover State Office Building
1305 E. Walnut Street
Des Moines, Iowa 50319
Phone: (515) 281-6899
Toll-free: (800) 972-2017

Medicaid Home and Community Based Services (HCBS) Waivers

HCBS Waivers allow states that participate in Medicaid to develop creative alternatives for individuals who would otherwise require care in a nursing facility or hospital. The services available under HCBS Waivers include case management, community transition services, private duty nursing, family training, home health aides, life-sustaining utility reimbursement, habilitation services, and respite care. Persons wishing to enroll for services should contact the local DHS offices in the county where the enrollee resides.

Iowa Department of Human Services
Hoover State Office Building
1305 E. Walnut Street
Des Moines, Iowa 50319
Phone: (515) 281-6899
Toll-free: (800) 972-2017
Website: www.ime.state.ia.us

Mental Health and Illness

Division of Mental Health and Disability Services (MHDS)

The Division of Mental Health and Disability Services (MHDS) works to ensure that all Iowans with disabilities - regardless of their age and financial resources - live, work, and participate fully in the communities of their choice.

Adult Mental Health and Disability Services Bureau
Kelley Pennington Ph.D., Bureau Chief
Iowa Department of Human Services
Hoover State Office Building
1305 E. Walnut
Des Moines, IA 50319-0114
Phone: (515) 281-5126
Email: kpennin AT dhs.state.ia.us

Children and Youth Services Bureau
Pam Alger, Bureau Chief
Iowa Department of Human Services
Hoover State Office Building
Des Moines, IA 50319-0114
Phone: (515) 281-6086
Email: palger AT dhs.state.ia.us

Iowa Federation of Families for Children's Mental Health

The Iowa Federation of Families for Children's Mental Health (IFFCMH) is a statewide advocacy organization whose mission is to effect programs and legislation, and to assist parents of children, who have emotional or behavioral disorders, are receiving mental health system services, are receiving special education services or are in the juvenile justice system.

Iowa Federation of Families for Children's Mental Health
106 South Booth
Anamosa, IA 52205
Phone: (319) 462-2187
Toll-free: (888) 400-6302 (Families Only)
Fax: (319) 462-6789
Email: Help AT iffcmh.org
Website: www.iffcmh.org

Mental Health America

Mental Health America (formerly the National Mental Health Association) maintains a referral and information center and can help you locate local chapters. These local groups have information about community services and engage in national and State level advocacy.

Mental Health America
2000 N. Beauregard Street - 6th Floor
Alexandria, VA 22311
Phone: (703) 684-7722
Toll-free: (800) 969-6642
TDD: (800) 433-5959
Fax: (703) 684-5968
Email: infoctr AT nmha.org
Website: www.nmha.org

National Alliance for the Mentally Ill (NAMI) of Iowa

NAMI IOWA is a non-profit, state-wide grass roots organization. The organization's mission is to raise public awareness and concern about mental illness, to foster research, to improve treatment and to upgrade the system of care for the people of Iowa through education, advocacy and support.

National Alliance for the Mentally Ill
5911 Meredith Drive, Suite E
Des Moines, IA 50322-1903
Phone: (515) 254-0417
Toll-free: (800) 417-0417
Fax: (515) 254-1103
Email: info AT nammiowa.com
Website: www.namiiowa.com

National Empowerment Center

The National Empowerment Center is a Technical Assistance Center run by mental health consumers/survivors. The Center's mission is to carry a message of recovery, empowerment, hope and healing to people who have been diagnosed with mental illness. The Center provides information and referrals to consumer/survivor resources nationwide and offers technical assistance to individuals and groups involved in consumer empowerment activities. The Center distributes recovery-related publications and sponsors education and training activities.

National Empowerment Center
599 Canal Street
Lawrence, MA 01840
Phone: 978-685-1494
Toll-free: 800-769-3728
Fax: 978-681-6426
Email: info4 AT power2u.org
Website: www.power2u.org

National Mental Health Consumers' Self-Help Clearinghouse

The National Mental Health Consumers' Self-Help Clearinghouse, funded partly by the Center for Mental Health Services, promotes and helps to develop consumer-run self-help groups across the country. Technical assistance and materials are available on such topics as organizing groups, fundraising, leadership development, incorporating, public relations, advocacy, and networking.

National Mental Health Consumers' Self Help Clearinghouse
1211 Chestnut Street, Suite 1207
Philadelphia, PA 19107
Phone: (215) 751-1810
Toll-free: (800) 553-4KEY [(800) 553-4539)]
Fax: (215) 636-6312
Email: info AT mhselfhelp.org
Website: www.mhselfhelp.org


The RAINBOW Center is a clubhouse model rehabilitation program for people with mental illness. The Center's mission is to provide a safe, supportive environment where individuals with mental illness can find support and have the opportunity to gain or improve work and social skills to enrich their lives.

305 15th Street
Des Moines, IA 50309
Phone: (515) 243-6929
Fax: (515) 243-1747
Email: rainclub AT aol.com

Multiple Sclerosis

National Multiple Sclerosis Society, North Central States Chapter

The mission of the National Multiple Sclerosis Society is to end the devastating effects of multiple sclerosis. The Chapter provides information about: local programs and services, information about multiple sclerosis, current research and treatments, current events and activities, and fundraising and volunteer opportunities.

National Multiple Sclerosis Society
Des Moines Office
Contact: Kelly Shinkunas, Development Manager
8187 University Boulevard, Suite B
Clive, IA 50325
Phone: (515) 270-6337
Fax: (515) 270-0337
Email: kelly.shinkunas AT nmss.org
Website: www.nationalmssociety.org/NTH

Multi-Service Agencies

Easter Seals

Easter Seals provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. Services, offered at several sites in the state, include: medical rehabilitation, job training and employment, child care, respite care, adult day services, camping and recreation.

Easter Seals
2920 30th Street
Des Moines, IA 50310
Phone: (515) 274-1529
TTY: (515) 274-8348
Fax: (515) 274-6434
Email: info AT eastersealsia.org
Website: www.ia.easterseals.com

Muscular Dystrophy

Muscular Dystrophy Association of Iowa

The Muscular Dystrophy Association (MDA) is a national voluntary health agency dedicated to conquering the more than 40 neuromuscular diseases that affect a million Americans of all ages. Services to enhance mobility and independent living are available in each community through MDA's local network of field offices. Additional programs include: research, education and a nationwide network of hospital-affiliated clinics where individuals receive diagnostic and follow-up care from specialists in neuromuscular disease.

Cedar Rapids District
383 Collins Road NE #110
Cedar Rapids, IA 52402
Phone: (319)393-8905
Fax: (319)393-5273
Email: info AT eastersealsia.org

Davenport District
852 Middle Road # 402
Bettendorf, IA 52722
Phone: (563) 359-5181
Fax: (563) 359-5335
Email: info AT eastersealsia.org

Des Moines District
Century II Office Building
1415 28th Street #175
West Des Moines, IA 50266
Phone: (515) 453-9489
Fax: (515) 453-9494
Email: info AT eastersealsia.org

National Resources


DisabilityInfo.gov is a comprehensive online resource designed to provide people with disabilities with quick and easy access to information about disability programs, services, laws and benefits. DisabilityInfo.gov is managed by the U.S. Department of Labor's Office of Disability Employment Policy in partnership with 21 other federal agencies.

The Center for the Study and Advancement of Disability Policy

The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.

The Center for the Study and Advancement of Disability Policy
Director: Robert "Bobby" Silverstein
1875 Eye Street, N.W., Twelfth Floor
Washington, D.C. 20006
Phone: (202) 466-6550
Email: Bobby.Silverstein AT ppsv.com
Website: www.disabilitypolicycenter.org

National Information Center for Children and Youth With Disabilities

The National Information Center for Children and Youth with Disabilities (NICHCY) serves as a central source of information on disabilities in infants, toddlers, children, and youth; IDEA; No Child Left Behind: and research-based information on effective educational practices. NICHY also provides listings of selected state-wide organizations that can put you in touch with resources in your community, as well as provide you with information and assistance about disability issues in Iowa.

National Information Center for Children and Youth with Disabilities
1825 Connecticut Ave NW, Suite 700
Washington, DC 20009
Toll-free Voice/TTY: (800) 695-0285
Fax: (202) 884-8441
Email: nichcy AT aed.org
Website: www.nichcy.org/Pages/StateSpecificInfo.aspx?State=IA

National Organization on Disability

The National Organization on Disability's mission is to expand the participation and contribution of America's 54 million men, women and children with disabilities in all aspects of life.

National Organization on Disability
888 Sixteenth Street, NW, Suite 800
Washington, DC 20006
Phone: (202) 293-5960
Fax: (202) 293-7999
TTY: (202) 293-5968
Email: ability AT nod.org
Website: www.nod.org

The George Washington University HEATH Resource Center

The HEATH Resource Center of The George Washington University, Graduate School of Education and Human Development, is the national clearinghouse on postsecondary education for individuals with disabilities. HEATH serves as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at American campuses, vocational-technical schools, and other postsecondary training entities.

The George Washington University
HEATH Resource Center
2134 G Street, N.W.
Washington, D.C. 20052-0001
Phone/TTY: (202) 973-0904
Toll-free: (800) 544-3284
Fax: (202) 994-3365
Email: AskHEATH AT gwu.edu
Website: www.heath.gwu.edu

Parent Organizations

Parent-Educator Connection

The Parent-Educator Connection (PEC) is a program that provides services and supports for families who have children with individual Education Programs (IEPs) and the educators who teach them in school. There are Parent-Educator Connection staff people in each Area Education Agency (AEA) in the state. Contact your local AEA office for information or Deb Samson for additional assistance.

Parent-Educator Connection
Contact: Deb Samson
Iowa Department of Education
Parent-Educator Connection
Grimes State Office Building
Des Moines, IA 50319-0146
Phone: (515) 242-5295
Email: Deb.Samson AT iowa.gov
Website: www.iowa.gov/educate

Parent Training & Information Center (PTI)

PTI focuses on the educational needs of children with disabilities in Iowa, particularly those who are underserved or may be inappropriately identified. In addition to technical assistance to families, PTI also provides training on the Individuals with Disabilities Education Act (IDEA). The goal is to help parents better understand the Individual Education Program (IEP) and Individual Family Support Program (IFSP) process and become better advocates for their children.

Parent Training and Information Center
321 East 6th Street
Des Moines, IA 50309-1903
Phone: (515) 243-1713
Toll-free: (800) 450-8667
Email: info AT askresource.org
Website: www.askresource.org

Parent Teacher Association (PTA)

The Iowa Congress of Parents and Teachers (Iowa PTA) is a member of the National PTA. The Iowa PTA is an active grassroots advocate for issues concerning the health, education, and safety of children and youth. The Iowa PTA collaborates with other organizations across the state to improve the well-being and future of all children.

Parent Teacher Association
5619 N.W. 86th Street, Suite 600
Johnston, IA 50131-2955
Phone: (515) 225-4197
Toll-free: 1-800-475-4782
Fax: (515) 327-5050
Email: ia_office AT pta.org
Website: www.iowapta.org

Peer Groups

For Youth with Disabilities

YLF (Youth Leadership Forum)

YLF offers a leadership program for high school juniors and seniors with disabilities. The forum focuses on the transition from high school to work and/or college.

Website: www.state.ia.us/government/dhr/pd/leadership_forum/youth.html

CLF (College Leadership Forum)

CLF is a leadership program for college juniors/seniors and vocational/technical undergraduates with disabilities. The focus is on job search preparation.

Website: www.state.ia.us/government/dhr/pd/leadership_forum/college_forum.html

JCP (Junior Commission Program)

JCP is for youth grades 7-12 with hearing loss or those who desire experience in the deaf and hard of hearing world. JCP sponsors a leadership program and a one-week summer camp.

Website: www.state.ia.us/government/dhr/ds/Webpages/NEW.JCP.htm

Pathfinders Transition Mentoring Program

Pathfinders Mentoring Program matches young adults ages 16-26 who are blind or visually impaired with successful and competent mentors who also have vision loss.

Website: www.blind.state.ia.us/Pathfinders/index.htm

For Persons with Disabilities, Parents & Families

Best Buddies

Best Buddies is dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.

Website: www.bestbuddiesiowa.org

FIND (Families of Iowa Networking for Disabilities)

FIND has created a database accessible to Iowa families who have a family member with a disability. Through the directory families will be able to find other families who share similar experiences and interests, as well as, access information to expand their knowledge and leadership qualities.

Website: www.askresource.org/find.shtml

IAPVI (Iowa Parents of Children with Visual Impairments)

The National Association for Parents of Children with Visual Impairments (NAPVI) is for parents of children who have visual impairments, including those with multiple disabilities.

Website: www.spedex.com/napvi/chapters.html#3

Iowa Hands and Voices

Hands and Voices is dedicated to supporting all families with children who are deaf/hard of hearing regardless of communication choice. The focus is on access to good information and support.

Website: www.handsandvoices.org/chapters/iowa.htm

Peer Action Disability Support (P.A.D.S.)

P.A.D.S. is devoted to improving the lives of people with disabilities through peer support and community activism. P.A.D.S is a unique group based in Linn County that is dedicated to the empowerment of people with disabilities by people with disabilities.

Email: empoweria AT mchsi.com

Prescription Assistance Programs

Partnership for Prescription Assistance

The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients without prescription drug coverage get free or low-cost medicines through the public or private program that's right for them.

Toll-free: (888) 4PPA-NOW (1-888-477-2669)
Website: www.pparx.org

Referral Services


Iowa's free statewide information and referral service for people with disabilities, their families, their service providers and other members of the community. This includes information and referral on assistive technology, Used Equipment Referral Service (UERS), funding information, architectural adaptation, mobility, adaptive devises, free legal advocacy, and more.

Center for Disabilities and Development
100 Hawkins Drive
Iowa City, IA 52242
Toll-free: 800/799-2001
TTY Toll-free: 877-686-0032
Email: iowa-compass AT uiowa.edu
Website: www.iowacompass.org

Respite Services

Iowa Respite and Crisis Care Coalition (IRCCC)

Respite Care services provide temporary relief to parents or caregivers of individuals with a disability, special need, or chronic illness. Respite Care can be provided to individuals of any age, both children and adults. IRCCC also provides information and training to families, providers and agencies, financial assistance to families in securing respite and crisis child care, increases public awareness regarding respite and crisis care services and the benefits to the community, education information on public policy issues related to respite and family support, and secures a flexible funding base.

Iowa Respite and Crisis Care Coalition
Executive Director: Doug Cunningham
3821 71st Street, Suite A
Urbandale, IA 50322
Phone: (515) 309-0858
Toll-free: (877) 255-3140
Fax: (515) 309-0860
Email: ed AT irccc.com
Website: www.irccc.com

Severe Handicaps

Iowa TASH - The Association for Persons with Severe Handicaps

TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy. TASH members are people with disabilities, family members, fellow citizens, advocates, and professionals working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society.

Contact: William Gorman, Chapter President
1674 Polk Ave. NE
Solon, IA 52333
Phone: (319) 338-9212
Fax: (319) 341-9443
Email: w.gorman AT sui.org
Website: www.tash.org

Social Security Disability

The Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) disability programs are the largest of several Federal programs providing assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.

Social Security Disability Insurance pays benefits to you and certain members of your family if you are "insured," meaning that you worked long enough and paid Social Security taxes. The Supplemental Security Income program pays benefits to disabled adults and children who have limited income and resources.

Apply at your local Social Security office as soon as you become disabled. Most of the application forms can also be completed online.

Speech and Hearing

Iowa Speech-Language-Hearing Association

The mission of the Iowa Speech-Language-Hearing Association is to be the organization that individuals with communication challenges and professionals who serve them rely on for advocacy, quality service, education, and attainment of the highest professional standards.

Iowa Speech-Language-Hearing Association
525 SW 5th Street, Suite A
Des Moines, IA 50309
Phone: (515) 282-8192
Website: www.isha.org

Spina Bifida

Spina Bifida Association of Iowa

The Mission of the Spina Bifida Association of Iowa (SBAI) is to promote the prevention of Spina Bifida and to enhance the lives of all affected. SBAI provides services such as a quarterly newsletter, reimbursement program, public awareness campaigns, and chapter and member services.

Spina Bifida Association of Iowa
P.O. Box 1456
Des Moines, IA 50305
Phone: (515) 964-8810
Email: SpinaBifidaIowa AT yahoo.com
Website: www.spinabifidaia.com

Spinal Cord Injury

Spinal Cord Injury Association of Iowa

The National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. NSCIA educates and empowers survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment.

Spinal Cord Injury Association of Iowa
Contact: Tim Ascherl
3936 NW Urbandale Drive
Urbandale, Iowa, 50322
Phone: (515) 270-1522
Email: tima AT advancedrehabtech.com
Website: www.spinalcord.org

Sports and Recreation

ASPIRE Therapeutic Riding Program

ASPIRE Therapeutic Riding Program provides benefits to children with disabilities through animal-assisted activities and outreach programs. ASPIRE offers therapeutic riding, a mini-visitation program, and a day camp.

ASPIRE Therapeutic Riding Program
Contact: Marilyn Moore, Executive Director
8100 Kimball Avenue
Waterloo, Iowa 50701
Phone: (319) 296-3096
Email: Info AT aspiretrp.org

Camp Courageous of Iowa

A year-round recreational and respite care facility for individuals of all ages with disabilities. The camp provides opportunities for social and personal growth within a supportive environment. Campers learn to try a variety of creative and challenging activities and experience success. Campers develop enhanced self-esteem which carries over to work, home, or school environments.

Camp Courageous of Iowa
12007 190th Street
P.O. Box 418
Monticello, IA 52310
Phone: (319) 465-5916
Fax: (319) 465-5919
Email: info AT campcourageous.org
Website: www.campcourageous.org

Special Olympics Iowa

Special Olympics Iowa (SOI) provides year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

Special Olympics-Iowa
551 Dovetail Road
P.O. Box 620
Grimes, IA 50111
Phone: (515) 986-5520
Fax: (515) 986-5530
Website: www.soiowa.org

Supplemental Nutrition Assistance Program (formerly known as Food Stamps)

Iowa's Supplemental Nutrition Assistance Program helps people with little or no income to buy food for a healthy diet. You may be able to get food assistance if you work for low wages, are unemployed or work part time, receive other public assistance, are elderly or disabled and live on a small income, or are homeless. For more information or to apply for food assistance, you may call the Iowa food stamp hotline at 1-877-937-3663 (1-877-Yes-Food). You may also apply online.

Transportation and Travel

Accessible Parking and Permits

Any Iowa resident with a disability that limits or impairs the person's ability to walk may be eligible to obtain a removable windshield placard, sticker or plate by completing an Application for Persons with Disabilities Parking Permit. Applications forms are available at any county treasurer's office, any Iowa DOT full-service driver's license site, or the Iowa DOT Office of Vehicle Services.

Iowa Department of Transportation
Office of Vehicle Services
Park Fair Mall
100 Euclid Avenue
P.O. Box 9278
Des Moines, IA 50306-9278
Phone: (515) 237-3110
Fax: (515) 237-3181
Email: vehser AT dot.state.ia.us

Aviation Consumer Protection Division

Complaints alleging discriminatory treatment by air carrier personnel (e.g., pilots, flight attendants, gate agents or check in counter personnel) should be directed to the Department of Transportation's Aviation Consumer Protection Division.

Federal Aviation Administration
Office of Civil Rights
800 Independence Ave., S.W., Room 1030
Washington, DC 20591
Email: airconsumer AT ost.dot.gov
Website: airconsumer.ost.dot.gov/problems.htm

Transportation Security Administration

Complaints alleging discriminatory treatment by Federal security screeners (e.g., personnel screening and searching passengers and carry-on baggage at airport security checkpoints) or airport personnel (e.g., airport police) should be directed to the U.S. Department of Transportation's Transportation Security Administration.

Transportation Security Administration Headquarters
12th Floor, Room 1203N, TSA-1
400 Seventh Street, SW
Washington, DC 20590
Toll-free: (800) 778-4838
TTY Toll-free: (800) 455-9880

Utility Bill Assistance

Iowa Low-Income Home Energy Assistance Program (LIHEAP)

The Bureau of Energy Assistance in Iowa administers the federally funded Low-Income Home Energy Assistance Program (LIHEAP). This assistance program is designed to help eligible households with the payment of a portion of their residential utility bills and heating costs for the winter heating season. Applications for LIHEAP are accepted at your local Community Action Agency between October 1 and April 15 annually.

Iowa Weatherization Assistance Program

The Weatherization Assistance Program (WAP) is a federally funded grant program that was established to help lower the cooling and heating costs for lower income persons, particularly the disabled, elderly, and children, by improving the energy usage and efficiency of their homes. The installation of electricity and energy efficiency measures in a household is determined by a computerized energy audit which will determine the cost effectiveness of each utility bill saving measure. The Department of Human Rights administers the Weatherization Program in the state.

James R. Newton, Bureau Chief
Department of Human Rights
Division of Community Action Agencies
Lucas State Office Building
321 East 12th Street
Des Moines, IA 50319
Phone: (515) 281-3861
Fax: (515) 242-6119
Email: jim.newton AT iowa.gov
Web: www.weatherization.iowa.gov

Low-Income Telephone Assistance Programs

Qualified low-income households may obtain two kinds of assistance from this program:

  • Link-up is a plan that reduces telephone connection fees by 50 percent or $30, whichever is less.
  • Lifeline is a plan that assists qualified low-income Iowans by providing a monthly credit of up to $10 on the local telephone bill (depending on provider).
  • Link-up/Lifeline application forms are available from your local telephone company, the Iowa Utilities Board, and most Community Action Agencies in the state.

Violence Against Persons with Disabilities

Council on Sexual Assault and Domestic Violence
P.O. Box 1565
Sioux City, IA 51106
24 hour crisis line: (712) 258-7233
Toll-free: (800-982-7233)
Satellite office in Onawa: (712) 423-3443
Satellite office in LeMars: (712) 546-6764

Domestic/Sexual Assault Outreach Center (D/SAOC)
P.O. Box 773
Fort Dodge, IA 50501
Phone: (515) 955-2273
Crisis Lines: (515) 573-8000, (888) 356-2006 (Toll-free)
Email: dsaoc AT dsaoc.com
Website: www.dsaoc.com

Iowa Coalition Against Domestic Violence (ICADV)
2603 Bell Avenue, Suite 100
Des Moines, IA 50321
Phone: (515) 244-8028
Iowa Domestic Abuse Hotline: (800) 942-0333 (Toll Free)
Website: www.icadv.org

Iowa Coalition Against Sexual Assault
2603 Bell Avenue, Suite 102
Des Moines, IA 50321-1120
Phone: (515) 244-7424
Iowa Sexual Abuse Hotline: (800) 284-7821 (Toll Free)
Fax: (515) 244-7417
Email: info AT iowacasa.org
Website: www.iowacasa.org

Prevent Child Abuse Iowa
431 East Locust, Suite 202
Des Moines, IA 50309
Phone: (515) 244-2200
Toll-free: (800) 237-1815
Fax: (515) 280-7835
Email: pcaia AT pcaiowa.org
Website: www.pcaiowa.org

Rape Victim Advocacy Program
320 South Linn Street
Iowa City, IA 52240
Phone: (319) 335-6001
Sexual Abuse Crisis & Resource Lines: (319) 336-6000
Toll-free: (800) 284-7821
Fax: (319) 339-7710
Website: http://www.uiowa.edu/~rvap